Well things are much better this week, my throat is better, a sore throat is just the worse thing you can have. I started my chemo treatments this week, I went on Wednesday to Highland for labwork then on upstairs to the chemo room for my treatment. I will receive a liter a fluid then during this I will get my chemo push of Velcade. The fluids I will also take each week for my kidney issues, I am still having poor kidney function/filtration, so if I am not drinking enough (in which I am) they have to give me fluids to try to help. After my treatment I just felt tired, I napped in the afternoon and just rested, that night I started taking my other oral chemo, one of the side effects is insomnia, well it hit about 3 am and I couldn't go back to sleep, I just tossed and turned. I am going to give it a chance before I gradually move it up to earlier in the day. Last night was better, I slept better waking up some but never staying awake a long length of time. I just took it easy yesterday and that's the plan today, so far so good as far as the chemo bothering me, just making me tired but I can handle that. Yesterday afternoon my face broke out or looked like a real bad sun burn, it felt burning hot like I had a fever, I even took my temp when it first started, I'm sure it is either from one of the chemo drugs or the steroids I take on the day of chemo. This too I'm sure will pass, it was just very strange, the heat would just come and go but the redness would stay. This is just another step in my recovery of my myeloma, if I didn't go in once or twice a week to Highland what would I do with myself? Also trying to keep up with all the other doctor appointments I have, it keeps me busy. I at least know what I will be doing the next three years.
Friday, August 20, 2010
Today is the 3rd week mark after my surgery, I seem to be doing good, still not much of a voice. I know he couldn't guarantee but hopefully by 6 weeks I will have my strong voice back. I started with other issues this week, Monday evening I started out with a sore throat, I just blamed it on the weather, these nice cool mornings we've had. By Tuesday it was worse and I was developing the old canker sores in my mouth as well. By Wednesday I was pretty miserable and thought I better call in, Highland wanted to see me, so I went in Wednesday afternoon. I was a little worried it might be running into strep, well it wasn't strep I had a bad case of yeast in my mouth and down my throat (Thrush) at least we found out what it is. It has been very painful, you can't eat hardly at all, I have been doing the ice cream/Jello diet this week. I am taking medication and using a swish and swollow, as long as I can keep my mouth numb for awhile I'm good. But I know that these things have to run their course, I know this to shall pass.
Friday, August 6, 2010
It's been a week today since my thyroid surgery, I'm glad I have a week behind me. I am doing good, just trying to heal, my neck is still sore and I'm sure there is still some swelling in my throat area. Candes and I made a trip to Little Rock late Wednesday for my early post-op appointment on Thursday. Dr. Stack said I was doing fine, he said my voice would probably come back by 6 weeks, but he couldn't guarantee that. I am still very hoarse, most of the time it is just above a whisper and other times it sounds a little stronger, it strains my throat some to use my voice very much. Clay may be glad my voice is gone but I will be glad when it returns.
I will have to do radiation, we have it scheduled for later in September. They will do injections two days and then the iodine radiation the third day, this will be done at Little Rock. I will have to be on an iodine free diet for two weeks before this starts, looking over the can and can't eat chart it looks like slim pickings. You can't believe all the things that have iodine in them, all dairy products like cheese, milk, sour cream and ice cream all have preservatives in them that I can't have. I'm glad it is only for two weeks and a couple days after, I wouldn't want to do this very long. But hey you do what you have to do, I found that out a long time ago.
Thanks for the cards that have been sent my way.
Monday, August 2, 2010
Clay and I headed to Little Rock on Thursday, July 29 to be there for surgery on the 30th. They had told us that they would call us the day before between 3-6 to let us know for sure where to go and what time to be there, we did get the call on the way down there. I already knew that i was his first surgery of the day and that would be around 7:30 but you have to be there so early. So they told us to be there at 5:00 that morning and surgery was scheduled for 7:15. We went to dinner, there were certain things they requested I stay away from, such as anything marinated in heavy sauces, that really takes alot of things off the menu, I had a grilled pork chop that was wonderful. From then on that night just clear liquids, well water is about as clear as you can get and that's all I drink. I don't think either one of us got much sleep that night, knowing we had to get up at 4 and probably a little anticipation as well. We made it to the hospital, checked in, there was very little paperwork to do since we had done all that ahead and I am definitely in the system by now. They sent me on into the holding room to get things started, alot of questions then they started the IV, it only took 2 times so I was thrilled. Clay got to come in and stay with me till they were ready. The O.R. nurse came in as well as the anesthesiologist and other people as well. Once he gave me the shot to kinda take the edge off he started rolling me down the hall, after that I remember nothing, I don't even remember going into the surgery room. That's probably always a good thing though, the next thing I know a nurse is talking to me in the recovery room. She went to call Clay to come in, I think I was still kinda out of it, they sent him to get my scripts filled, in the meantime I was up and got dressed and was ready to go. I did throw up a couple of times while in the bathroom, I think it was just the getting up moving around so soon, I never was really sick at my stomach, which is always a good thing. Clay went to get the car and they wheeled me out to meet him and we were off to the apartment. I just slept/rested all afternoon, went into the living room setting/laying on the couch in the evening. Clay fixed our Chicken Alfredo for dinner, the noodles seemed to slide down, I did minus the chicken. I did have some Jello and ice cream later as well. I seem to have slept a little better Friday night. When we got up Saturday morning I said we might as well get around and head home, we didn't rush but we got home around 1:30 Saturday afternoon. I am pretty sore, my neck area and around the incision area it feels bruised type sore. I am doing better, knowing the soreness will go away. I was able to talk pretty good on Friday at the hospital and at the apartment but Saturday morning my voice was pretty much a whisper and that's the way it still is. I know this too will come back, it just may take awhile. I go back to LR on Thursday for my pre-op checkup.