Sunday, June 28, 2009

First Visit

As I mentioned in the early on post, we came to UAMS at Little Rock for testing. Well, I never would have imagined what all kind of tests they would put you through before we could ever get on the road to recovery. My first visit to UAMS was June 10th, we were to be there at 7:30 to pick up our packet/schedule for the whole week. First stop was the lab, then on to the dreaded bone marrow biopsy, no time to moan and groan because we were now off to xray and a CT scan. Tonight I had to start on a very limited diet for a Pet scan the next day, we went to Outback, Clay and I both had a steak (I couldn't have the bread, croutons or cheese on my salad)and I think it was the best steak that I had ever had before at Outback. Maybe it was because I knew I was not going to be able to eat until after the Pet scan, so I went all the next day without anything to eat or drink. The Pet scan was at 4pm, I was very hungry after that. Other test on June 11th included an EKG, bone survey. On June 12th, I was scheduled for an MRI, Echo and a meeting with the nutritionist. After a weeks worth of fun we were ready to come home. W e headed home a little afternoon, it was good to get back home, even though we knew it was just for the weekend. It was good to see everyone, going to church on Sunday was very emotional but it was good to be around my friends at church. Then back to Little Rock on Monday, June 15th.

We met Dr. Barlogie for the first time. We met with him on Tuesday morning, he talked to us about my poor kidney function and how important it was for me to keep hydrated. He scheduled me to have a 3 line (like a port) put in so I could have fluids daily. This line is surgically sewn in, it was not a pleasant experience, you do get use to it but there is alot of discomfort involved. After the line was put in I was sent to the Chemo room to take in a bag of fluids, this takes an hour or so running through your line. We also found out that 2 spots showed up on the Pet scan as hot spots, one was in my abdomen area (the area of my previous ovarian cancer) and another in my thyroid. This called for another biopsy, they scheduled the abdomen for Thursday, June 18th, this biopsy came back fine. Just a finding of scar tissue. They were unable to schedule the thyroid biopsy the same week. They scheduled it for Wednesday, June 24th, at 4:15.

They told me I could come home for a few days, but I had to have scheduled visits to Highland Oncology to get fluids on the days I would be in Fayetteville. I worked Monday & Tuesday, June 22 & 23, Clay stayed in town to work on Wednesday. My sister brought me down on Wednesday and Clay was here for another Dr. appt on Thursday. We did not hear from the biopsy results until Friday, why it took so long I don't know. The news wasn't good, it was diagnosed to be thyroid cancer. Go figure. We have not talked again to the thyroid dr. but Dr. Barlogie said it wasn't a fast growing cancer, so our goal right now is getting my kidney's in better shape. My thyroid will have to come out, but we are going to hold off just a little while on that. I have a lot going on this week, I will post about all of that later. Clay headed back home to work most of the week, Andrew is here with me for a few days, then my sister will come down for a couple of days, then Clay will be here to finish out the week and stay most of the weekend. So we are always having "changing of the guards" around here. I am so blessed to have "people".

I would like to say a BIG Thank-you for all the prayers that have been offered on my behalf and for my family during this difficult time.


  1. You know I love ya and our family is thinking about you and lifting you up in prayer to the Lord daily.

  2. Barbara, You are in my thoughts & prayers daily. I am so sorry you are having to go thru all of this. Please know that I am here if there is anything you need or anything I can do. Love ya! Kellye

  3. I know the last few months probably feel like a nightmare. You don't deserve any of this, but I know you are one strong woman. We can't wait to see you! Prayers are being sent up on your behalf. God will bring you thru this!

  4. You know you are in my thoughts and prayers.
    Miss you!! And remember that Michelle and I can come and stay if you need us to.
    Love ya