Added Another (B)

By the time my treatment was over they had called another prescription in for the Neuropathy. I will continue to take the one I have been taking for several months, just take this one in addition to it. This medication is one that I will ease into, the first 5 days I will take it at night, then the next 5 days of a morning, after that 3 times a day. It just gets really scary when you can't hardly feel your feet or legs. Hopefully this will help, it will probably take close to 30 days before I can tell a difference though.

Again get out and enjoy the beautiful weather this week-end!!!!!!!

Fall Time (A)

I love this time of the year, even though some of the afternoons have been warming up it just feels good. These cool mornings and cool evenings are great, fall is in the air. One more day in September and we will start a new month, before you know it Christmas will be here. Time always flies seems like this time of year, I hope fall stays a while so we can enjoy this weather. In years past we sometimes didn't really get to enjoy the fall because it jumped right into freezing winter weather.

Well I think I am finally feeling better as far as the viral infection goes, hopefully it is out of my system now. After the fever, sore throat, and no voice for a week then it seem to have settled in my neck, shoulders and back, I think a week of that was actually worse than the first week. With antibiotic, heat & alot of do nothing I think I'm better. Now its just back to the usual bone pain & Neuropathy which is getting alot worse. I have had issues with the Neuropathy but with time it is getting more severe, my feet stay tingly all the time now and it seems to be traveling up my legs as well. I take one medication for this but it is not really doing the trick, Little Rock has said that they could prescribe another drug as well but that my oncology clinic could do this as well. So I am here today we will see if that happens if not I will have to call Little Rock back. It is just a terrible feeling when you can't really feel your feet, it's the same feeling when your feet go to sleep and they are waking up, but then they just stay that way all the time. I finally was able to keep my dentist appointment for my crown, came into HOG to get my shot on Monday to boost my counts and back on Tuesday for bloodwork, to see if it did the trick, and it did. So it was on to the dentist for the crown. It's been a long time in the planning for this crown, glad to finally get it done. So with treatment today I have been to HOG three times this week. Next week will be about the same type of week, I have needed to have some things done for Little Rock since April and its just now going to come about. My thyroid doctor in LR ordered Thyrogen injections two days in a row and then blood work a few days later, this medication has been on back order since April and just now has came in. There evidently was a shortage in Arkansas even at UAMS in LR, this is to check to make sure there's no cancer left in the thyroid area. Its been a year since I had my radiation for thyroid cancer.

Everyone enjoy this weather and have a great week-end, whether you take in BBB or stay away.

How Things Can Change

Since just a few days ago things have really changed alot, when I woke up on Tuesday morning (the day of my last post) my throat was a little sore but that can happen overnight so didn't worry. As the day went on it pretty much passed, I felt ok, Clay has had the crud or whatever since last Friday, he ended coming home from work around 10 that day (Tues) because he felt so bad. He slept alot that day, went to work the next day as well as Thursday & today, he just can't knock it. He decided to run to the dr at noon, got a shot, antibiotic & something for his cough. Now mine seems to be a little different than his, Tuesday night mine started in, so I guess that sore throat was telling me something after all. I started feeling bad and chilling, had 101 temp, after laying around awhile & after taking Tylenol my temp went up to 103. On Wednesday I decided I might should call Highland to see what they would have me do, they wanted me to come in to see an APN, my mother in law took me in since I felt so bad, they did a throat culture thinking it could be strep. Well it wasn't strep, it is a viral infection so great that means no antibiotic will help, so it will just have to run its course. It just really wipes you out, light headed, achy, very sore throat, voice gone & just over all beat. So this probably changes the plans for next week as far as getting my crown done. If I'm still not up to par the dentist won't want to work on me and you can understand that, since this viral thing has been contagious, no one else wants it. That means I will have to reschedule my appointment yet again and that means I will have to change my shot on Monday & bloodwork on Tuesday till the week that I do get back into the dentist. It is all a domino effect, one thing depends on the other. It is always so interesting, something is always going on to keep my life exciting. I am hoping at this point this infection runs its course soon and gets out of my system, Clay and I both have just been dragging around and its not fun. Being lazy is one thing but having to be lazy because you don't feel good is a different story, it gets old. At least I can stay home, he has to go to work not feeling good cause it just drags on, one day you think you might be feeling better & the next day you are worse. So this is my life and how it has played out in just a few days time, you never know how things can change.

Cooler Days

I'm sure everyone is enjoying these cooler temperatures the last couple of days, I also hope you all had a nice 3 day weekend and did something fun over Labor Day. Ours wasn't real productive but it was very nice especially since we weren't having those 100+ temps. Jeremy, Kara & I took Jonah to the County Fair last Thursday night to see the animals, he wasn't too impressed with any of it but the rabbits. I think he liked the rabbits because he could get down on their level and actually touch them, he did also like some of the chickens. I think he felt a little safe because they were in their cages. We did not do the carnival scene, but after we ate we went into the livestock auction to see some of the 4-Hers sell their animals. We decided it was time to have as Jonah calls it "a snack" so Kara & I headed out with Jonah to get a snack. We mentioned a few things to him and of course he would just agree to anything that sounded good, or maybe he would take one of each. Well we decided on cotton candy & ice cream. You will have to remember that last week it was still very hot, we were smart enough to have them put it in a cup not a cone. Jeremy probably wasn't very happy with Mimi getting him sugared up before bedtime but I think he did OK that night after all. We had a fun time, he enjoyed riding the tractors & mowers most of all I think, just like every other little boy.

I have been doing pretty good these last couple of weeks, having alot of bone pain, leg pains & back pain but I think that is just part of this Multiple Myeloma business, I don't think it ever goes away. I will go in for treatment on Thursday as usual, then next Monday I will go in for a Neupogen shot to boost my WBC so I can have a crown put on one of my molars. We have rescheduled this appointment I think 4 times now due to my counts, there is a #inside the WBC that has to be at a certain level before you can have a big procedure done and mine is just not where it should be. When I was in Little Rock, August 10th Dr. Barlogie told me that I could have Highland to give me this shot to see if it will boost it up to where it needs to be, I will go back in again Tuesday morning to do blood work to see if it raised it up enough, it so on to my 10 dentist appointment if not reschedule one more time.

Everyone have a good week, tomorrow is already hump day. Take time to enjoy this beautiful weather.

Take A Break

The wedding is over and we can finally take a little break from wedding plans, arrangements, ordering, picking out and up every other day. It was great, a very beautiful wedding if I do say so myself. It was a perfect day, a little warm for the ceremony but toward the end a cool breeze came through then some rain moved in during the reception. We needed the rain so bad I don't think any complaints were heard. I think that the ceremony and reception went just as Kara had planned for them to go, I hope her every dream came true. They flew to Costa Rica Sunday morning, I know they will have a good time, I'm sure the resort will be amazing, can't wait to hear about it and see pictures.

I skipped my treatment last Thursday due to running errands for the wedding, they had said that I could miss once in a blue moon, I thought this was the right time. I have had alot of swelling in my left foot, ankle and leg. They still haven't decided why this happens whether it is the chemo, the fluid, being up on it way too much or what but starting Sunday I started having pains in my upper leg deep inside. Decided to hold off calling for a day or two, took it easy Sunday & Monday then I called today, went in for a nurse consult, had a Doppler ran to look for blood clots. Good news there was not a clot but I have sluggish blood flow in the main vein, they are thinking there might be some blockage somewhere so they suggested I have a CT ran but I had just had one a month or so ago. They will study it a little closer in the meantime I am ordered to bed rest or at least down with my leg very elevated applying heat. I will do this rest of today as well as all tomorrow, I go for treatment on Thursday and Dr. Rosenfeld will decide what needs to be done if anything. We just hope for the best and can only think that I have been doing a little more than I should, we do know that I need to take it easy, things will slow down now I know.

Thank You Jesus

We are so thankful for the much needed rain and little cooler temps, we just hope the temps stay down for the wedding. We really were not looking forward to a wedding with 108 degree temps. Just a little over a week away to the wedding, we have been really busy with last minute things, there are so many things that can't be done until the last little bit. We are getting very excited as the time gets so close.
Made a trip to Little Rock last Friday, Candes and I left at 7:30 to head down for testing. This visit my only orders called for blood work and a bone marrow biopsy. The biopsy wasn't too bad this time, it was a little painful but they always are. We ate lunch at On The Border then headed back home, kinda a quick trip down and back. Then this week Clay and I went down yesterday to see Dr. Barlogie to get the results, things are going good he seems to think so just keep on doing what I'm doing. I will go back in January for my next appointment for testing, at that time there will be alot more testing involved so it will be an overnighter. But that is about 5 months away so I don't even have to think about that now. The only thing different is that I will take a Neupogen shot in September to boost my Grans count inside my WBC so that I can have my crown done. When this count is so low you are not suppose to have dental work done, so I will get a shot on a Monday, come back in on Tuesday to see if it raised it before I go to the dentist. After the wedding, things will have to slow down, I need to take a little easy for a change and rest a little more.

Hope everyone has seen the rain at some time or another, I sure there has been no complaints.

Have a good weekend.

It's Thursday

Well it is Thursday again, I always know what I am going to be doing on Thursday from about 9-11:30 or 12. Things go pretty smooth with the chemo, I am so thankful it is not a chemo that makes me sick, with the wedding coming up I don't have time to be sick.
Jonah stayed with us Monday night and I kept him till mid morning Tuesday till Jeanette picked him up. We will get him again Friday afternoon and we will keep him till they get home, maybe Tuesday morning, since they don't get in till 9:30 Monday night, they did make it safe to Haiti.

Saturday the wedding will only be 4 weeks away and we still have things to do but we are trying to wrap it up. They have had 2 showers already that have been really nice, and have received lots of really nice gifts. They have 2 more showers coming up next weekend as well, after that they should be ready to set up house keeping. Seeing all the new things just goes to show you what we all realize, that it should be a rule that you get a shower every 10 or at least 20 years, it just makes sense. We can only pray that temps lower just a little bit before August 20th.

Have a great weekend, stay cool if you can.