Tuesday, August 23, 2011

Take A Break

The wedding is over and we can finally take a little break from wedding plans, arrangements, ordering, picking out and up every other day. It was great, a very beautiful wedding if I do say so myself. It was a perfect day, a little warm for the ceremony but toward the end a cool breeze came through then some rain moved in during the reception. We needed the rain so bad I don't think any complaints were heard. I think that the ceremony and reception went just as Kara had planned for them to go, I hope her every dream came true. They flew to Costa Rica Sunday morning, I know they will have a good time, I'm sure the resort will be amazing, can't wait to hear about it and see pictures.

I skipped my treatment last Thursday due to running errands for the wedding, they had said that I could miss once in a blue moon, I thought this was the right time. I have had alot of swelling in my left foot, ankle and leg. They still haven't decided why this happens whether it is the chemo, the fluid, being up on it way too much or what but starting Sunday I started having pains in my upper leg deep inside. Decided to hold off calling for a day or two, took it easy Sunday & Monday then I called today, went in for a nurse consult, had a Doppler ran to look for blood clots. Good news there was not a clot but I have sluggish blood flow in the main vein, they are thinking there might be some blockage somewhere so they suggested I have a CT ran but I had just had one a month or so ago. They will study it a little closer in the meantime I am ordered to bed rest or at least down with my leg very elevated applying heat. I will do this rest of today as well as all tomorrow, I go for treatment on Thursday and Dr. Rosenfeld will decide what needs to be done if anything. We just hope for the best and can only think that I have been doing a little more than I should, we do know that I need to take it easy, things will slow down now I know.

Thursday, August 11, 2011

Thank You Jesus

We are so thankful for the much needed rain and little cooler temps, we just hope the temps stay down for the wedding. We really were not looking forward to a wedding with 108 degree temps. Just a little over a week away to the wedding, we have been really busy with last minute things, there are so many things that can't be done until the last little bit. We are getting very excited as the time gets so close.
Made a trip to Little Rock last Friday, Candes and I left at 7:30 to head down for testing. This visit my only orders called for blood work and a bone marrow biopsy. The biopsy wasn't too bad this time, it was a little painful but they always are. We ate lunch at On The Border then headed back home, kinda a quick trip down and back. Then this week Clay and I went down yesterday to see Dr. Barlogie to get the results, things are going good he seems to think so just keep on doing what I'm doing. I will go back in January for my next appointment for testing, at that time there will be alot more testing involved so it will be an overnighter. But that is about 5 months away so I don't even have to think about that now. The only thing different is that I will take a Neupogen shot in September to boost my Grans count inside my WBC so that I can have my crown done. When this count is so low you are not suppose to have dental work done, so I will get a shot on a Monday, come back in on Tuesday to see if it raised it before I go to the dentist. After the wedding, things will have to slow down, I need to take a little easy for a change and rest a little more.


Hope everyone has seen the rain at some time or another, I sure there has been no complaints.


Have a good weekend.







Thursday, July 21, 2011

It's Thursday

Well it is Thursday again, I always know what I am going to be doing on Thursday from about 9-11:30 or 12. Things go pretty smooth with the chemo, I am so thankful it is not a chemo that makes me sick, with the wedding coming up I don't have time to be sick.
Jonah stayed with us Monday night and I kept him till mid morning Tuesday till Jeanette picked him up. We will get him again Friday afternoon and we will keep him till they get home, maybe Tuesday morning, since they don't get in till 9:30 Monday night, they did make it safe to Haiti.

Saturday the wedding will only be 4 weeks away and we still have things to do but we are trying to wrap it up. They have had 2 showers already that have been really nice, and have received lots of really nice gifts. They have 2 more showers coming up next weekend as well, after that they should be ready to set up house keeping. Seeing all the new things just goes to show you what we all realize, that it should be a rule that you get a shower every 10 or at least 20 years, it just makes sense. We can only pray that temps lower just a little bit before August 20th.

Have a great weekend, stay cool if you can.

Thursday, July 14, 2011

Count Down

Time is getting close for the wedding now, only 5 weeks from Saturday. Trying to tie up loose ends and finish up things, just keep thinking of more things that need to be done or that hasn't been done that needs to be done. I've been feeling pretty good lately, so glad to have the weather be just a little bit cooler even if it is just for a day or two. We sure didn't get much rain at our house but we will not complain and be thankful for what we did get.


Jeremy and Adrienne along with David and Catherine are Haiti bound next week so between Jeanette (A's mom) and us we will get to share Jonah for the week. They are excited about getting to go, there are alot of issues that go along with it, like no refrigerator, very little electricity and water is always a problem. The girls will be working in the orphanage and the guys will be doing some construction.


Treatment went fine on Thursday, my counts were pretty good this week, I'm sure they will drop next week though, they always go back and forth. Have a good weekend and try to stay cool.

Tuesday, June 28, 2011

Hot, Hot, Hot

I don't remember it ever being so hot in June, and to stay this hot for such a long time. We can only hope that we are getting August weather now and then in August we will get spring June weather, thinking of the outdoor wedding that is. Things are moving forward with all the wedding plans, it is getting within a few weeks now, time to tie up all loose ends. I still haven't found my dress yet, I have been looking but just haven't found anything yet, there are just not many places around here to look. We are going to run over to Tulsa one day this week to see if I can find something there. I want to have my dress so I don't have that to worry about.





Things with me are going pretty well, I have a lot of swelling some days in my left leg/foot and even toes. They have been watching it and decided to schedule a Doppler to check for blood clots. Having had clots before I knew that this wasn't the same but we would check it out. They found out that I have a chronic blood clot that had probably been there for some time but it should be ok just continue to take am aspirin a day. Nothing acute and that was a good thing.





They had tested my CA-125 a couple of weeks ago and I got the numbers back last week, it was elevated, not good news. This is the tumor marker they go by for ovarian cancer, even though we don't know what my original numbers were 6 years ago, because no one knew that could have been the issue then. Between Dr. Rosenfeld and Dr. Hightower they feel like I needed to have a cat scan ran, so here I am at Highland drinking that yummy drink waiting the hour until its time for my scan. (Tuesday) Hopefully it is just something weird going on and not that they would find cancer again. To not have ovaries and to be diagnosed with ovarian cancer once is bad enough but if they found it again I just don't know what I would think.






(Thursday) I am here at Highland again, had lab work and saw Dr. Rosenfeld to get the results of the scan, Clay met me here because I think in both of our minds we thought we would be getting bad news. We were so relieved Dr. Rosenfeld said the scans were clean, no sign of cancer there, they are going to keep a eye on the tumor marker to stay on top of things. I have been really struggling with this for a couple of weeks just dreading the outcome, but now I can breathe easier. So thankful.....




(Wednesday) To back up a day, made the trip to Tulsa yesterday for dress shopping, it was a 8-8 long day, I was totally worn out by the time we got home. But the main thing is I found my dress for the wedding, this is something I just wanted to be able to mark off my list and know that it was done. I am very pleased with my find.




HAVE A GREAT WEEKEND & A HAPPY AND SAFE 4 TH OF JULY

























Thursday, June 9, 2011

Long Time

Wow, I didn't realize it had been so long since I had posted, I'm kinda behind. Doing my usual Thursday routine at HOG right now, getting fluid, getting chemo & today I'm taking the bone strengthening bag as well. We are really having issues with my counts right now, my WBC is always low seems like, but there is a # within the WBC that is so low they have to either call Little Rock or check with Dr. Rosenfeld before they treat me. It is 0.7 and it needs to be at least 1.0 before treatment is given. It would be nice to know how you could get these numbers up but the nurses say there is nothing I can do to raise it up. So we just carry on and hope for the best, it would be nice to have normal blood counts for a change but that's probably not going to happen anytime soon. Been feeling pretty good lately, just issues with the back pain still, think it is time for another massage. It helps for a little while anyway.


Things are deep into the planning and doing stages for the wedding now, it will be here before you know it. It is a busy time trying to get everything done at the right time and trying not to leave something undone. It will be a fun time the next few weeks leading up to the event in August.


Summer is so here even though the calendar says its not yet, it has been so hot lately, we complain when it is raining too much and then when it turns off hot with no rain we complain. We are never happy......


Have a wonderful weekend, enjoy this hot weather, out in the pool, doing something fun or staying inside in the cool which ever you decide to enjoy it.





Wednesday, May 11, 2011

Mother's Day

Last weekend was really nice, the weather was beautiful for a Mother's Day weekend. Candes and I took our mother to eat lunch at Briar Rose on Saturday, it is such a nice place to eat, so glad it is open. Sunday evening I wanted to go to Tims on mission to eat, so we all met there for dinner, it was so good. After we ate everyone came to the house for awhile. I got some really nice gifts for Mother's Day.


I've been having more low back pain than usual, probably starting Sunday, but not really thinking about it being anything but the normal. Monday it just got worse as the day went on, still not putting it all together. Yesterday morning I ran into HOG lab first thing. Between Monday night and Tuesday morning I had put it all together, having other issues to go along with the back pain. I no more than got back home and they were already calling me, I have a very bad UTI so I had to go back in later to pick up the antibiotic. The nurse said it would probably be a good 24 hours before I felt any better. I can tell this morning I think the antibiotic has kicked in, in a day or two I'm sure I will feel much better.


I still haven't put out any flowers, first it was the cold nights then the wind and now its just doing it. You just hate to go to all the trouble working your beds then have to cover everything or lose it one. I am ready to get started though, Clay usually helps me with the beds, I always like the finished product but its just having the energy and strength to get it done.



Have a good week......